That is a title and executive summary all in one. All that remains now is to find out if T can be funded for Permitrix(sp?). ACC turned him down for this drug as he contracted mesolithelioma outside of NZ. Only option available seemed to be to go as private patient to an oncology clinic in Auckland , however the Dr here is exploring other avenues of funding. It is quite bizarre as the hospital here is licensed for and uses permitrix but we cannot get it unless “approved” Cannot even pay for it here, has to be Auckland. So we wait and see how the Dr gets on, if no joy he will have the usual, lesser treatment without the addition of permitrix. It was described to me as like using 40% cocoa instead of 70% cocoa when making a cake. I can definitely tell the difference so hope T gets the 70% cocoa mix…
When we arrived home last Friday , we collected the mail from our neighbour- yes there is one who talks to us! No notice re an appointment for T at oncology. He had a bad cold by this time and his shoulder was causing him serious grief so an appointment was needed quickly.
I phoned the hospital, no phone, funny, tried the email, no connection…. No worries I thought, use the cell phone, all I need to do is change the sim card from the Uk one. First find the phone, yes, second find the sim card!!!! Checked the envelope that tesco gave us, no sign of the sim card, only thing was to go thru all the luggage.
T had retreated to bed and time was marching on, the hospital shuts down around 4.30 pm and it was 2 pm…
i went thru all our luggage, sorting into wash, don’t wash, throw piles as I went. Finally after 40 minutes I was back to the teso pack, went thru it again and of course there in the tidily rolled up docket was the sim…
Woke T up as I had no idea how to even get into a phone.He did it then i went to ring the hospital. When we left we had 40 dollars credit but of course it expires if not used, no credit, so I roared off to the service station and got 40 more dollars worth of credit. Good lurk that useby date for the telcos…
Came home put the credit on and first call was to the phone/internet provider.She had me turning things off, which entailed crawling under the desk and various other contortions, by 3 pm we were back in the telecommunication world. By 3 15 pm t had an appointment for Wednesday.

We eventually arrived at Wednesday, x ray showed more detrioration in the left side of the lung and chemo was suggested. We thought about it all day Thursday with emails and calls whizzing back between us and the cancer Co-ordinator, clincher was the awful pain in T’s shoulder is referred pain from the lung and would improve, for a time with chemo…. T has now gone onto oxynorm and that is giving him some relief.
So now we wait but it seems chemo will start in the next two weeks, three cycles, three weeks apart. America is out for the time being…

As for me, well I apparently missed an appointment with the gyno, remade that for later in the month. Plus , radiation the gift that keeps on giving is causing me to have a colonoscopy sometime soon. Only thing about that which is postitive is the valium which is poured into you….

Daffodils are coming out but it is damn cold here…..